About Us

Brooke and Brielle have both been diagnosed with Spinal Muscular Atrophy Type II.  There is no cure for this disease but the National Institute of Health believes a cure can be found within the next 5 years with proper funding. 

Our family has created this page to inform you about the disease, spread awareness and give updates about our life with SMA. 

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All donations will go towards Brooke and Brielle’s medical needs fund.

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All proceeds are donated to Brooke and Brielle’s medical fund!

Thank you Angi!


 

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Thank you Alex!

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Entries in Michigan Senator (1)

Sunday
Aug222010

August 22 ~ Declared Spinal Muscular Awareness Day In Michigan.  

DateSunday, August 22, 2010 at 6:51PM | AuthorSarah

Brielle and Brooke received a very special certificate in the mail from our Michigan Senator, Carl Levin, in honor of SMA Awareness Day!

            

   Brooke and Brielle with the special flag from our Senator.
  

The certificate reads:

“This is to certify that the accompanying flag was flown over the United States Capitol on August 22, 2010.

At the request of the Honorable Carl Levin, United States Senator, this flag was flown for Brielle and Brooke Kennedy on the occasion of Spinal Muscular Atrophy Awareness Day.” 

Check out our feature in the FSMA Chapter Updates here!

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