Hello,
hey friends its nice to see your post i just wanted to know more about the website can anyone help? need to know more about this.
Just have a look:- goo.gl/X9cKWX

Brooke's story and success gives me hopes for my 20-month old son with SMA II.
Thanks for sharing!!!

This Site is awesome and informative.. Very touching and inspiring story. Live Long. Cheers.
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This site deals with a fantastic ideas and comments. I'll share this to my friends. Thanks for making this site possible.
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Good Site! Post and comments were very good, topics and discussions are very close to the life, very fine narrative site.
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Great to find your blog page! Always great to find others willing to share their stories and help raise awareness. I blog as well and share my story of living with Becker's Muscular Dystrophy. Keep up the good work!

Brad

This is definitely one of the better blogs I have read. You are so insightful, have so much real stuff to bring to the table.

Brielle you are an absolute champion and an inspiration. My grandson Adam of fifteen months has just been diagnosed with SMA type 2.
Brielle you are very fortunate to live in a wonderful country like the USA where help and treatment can be found. In Australia we are still in the teething stages. I hope all goes well for you. Love from Adam and the family from down under.

Great job! Nice to hear about Brooke and Brielle!

I am a physical therapy student researching hippotherapy for a class project and I came across your website. Your girls are beautiful :o) Best of luck to all of you. Kudos on the website- definitely a great way to raise awareness and let Brooke and Brielle's story be heard!

I met the girls last week when I got you guys your ice cream at Sanders, in the Morley Candy Factory. They were so sweet and funny! This is a great site! Cheering the girls on every step of the way :)

I hope their condition gets be rooting for them all the way

Very nicely done website. Thank you.

Hi Kennedy family, It was such a joy to meet you on the Disney Dream cruise in Feb. As I'm reading your postings my heart is overwhelmed with the courage, strength, & love you all have. Brooke & Brielle I think of you everyday as I look at the soap you gave to us on the last night of the cruise, I will cherish it always. We will keep you in our prayers. You are so beautiful, inside & out & an inspiration to everyone who has the privalege to have met you. Hugs & Love, Ileen & Eddie from "table 104"

Isis Pharmaceutical's antisense SMN2 mrna splicing to make SMN1 looks very promising. If you are unaware of their clinical trials, please investigate ASAP.

Eric,
Unsure if you remember Chad and I, but we met you via many Rugby outings and events and Mike and Beth's wedding (we were the host and hostess!) We have been actively involved in supporting the research of SMA. One of my very first students, who I remain in close touch with, has a daughter with SMA. This was the first time I had heard of it and since then, we donate yearly.

Dana Craven is an incredible parent, as you both are. Her daughter Sydney seems to have a more progressive form of SMA, but recently announced her 10th birthday in their yearly Christmas card. I am providing her a copy of the article with my belated card with the hopes that you may reach out to one another. Your daughers are amazing, as is hers. She has remained hopeful and their second child was born without any symptoms. It was a risk and she regrets nothing about her decision and their life choices as a family and parents.

I will keep you and your family in my thoughts and prayers and hope that you can find even greater support with other parents who are faced with this genetic disease. Hope all is well and glad to see your hard work and study has gained you much acclaim. Your wife must be a dollie.

Regards,

Karen and Chad Jansheski

Hi my name is Chris Falk. I am the owner of Kzoo Music Scene (www.kzoomusicscene.com). One of the many things that we do is put together fundraisers for great causes. I came across the article in the Kalamazoo Gazette about your daughters Brooke and Brielle and their spinal muscular atrophy. I would love to meet with you to talk about a possible fundraiser to raise money and awareness with you. My number is 504 615 5474. Please let me know when a good time to meet would be.

Hallo, Brielle and Brooke,,this is Helmi (Heinz's Mom) like to see you 2 in your outfits from your last Birthsday~~`hope to see you soon again,,keep your beautiful smiles!! Love, Helmi

May God hold your beautiful little girls in the palm of his hand.

Hi! My name is Terie, and I am Brody Caldwell's mom. We are so excited to become friends with Brielle because Brody is in Brielle's kindergarten class! Thank you for sharing your beautiful family's story and the information about SMA. You have clearly put an incredible amount of work into this website, and I hope you are proud of yourself and your little miracles! Hope to meet you soon.

Hi,
The girls are beautiful!!! I was happy to cross your site while surfing the net.
Our son Morgan has Type II SMA. He'll be four next month, and acts like 40.
May God Bless you guys! Look for us at any of the Conventions, and remember
Morgan Steward!

Love,
The Stewards

this is such a wonderful website! keep up the good work!

keep smiling, and never give up brooke and brielle! <3

I had the pleasure of working with your husband in Mattawan and he was so kind to share your site with me. You have been blessed with two beautiful girls and we can't wait to see more of them. Thank you!!

Great site. I am always researching for my 3 yr old son with Spina Bifida. We have a lot of the same therapies and needs. I would love to follow your daughters and see all that they do.

I am a nurse who has switched career field to pediatrics. I have been researching SMA, the diagnosis of my new client. Your videos and knowledge has helped me see SMA from the parent's and child's side. Something I couldn't find elsewhere. Thank you so much!