Rep. Fred Upton Commercial featuring Sarah, Brooke and Brielle!
Rep. Fred Upton has always been open and willing to meet with us and listen to our needs.
Congressman Upton is the US House of Representatives Chairman of the Energy and Commerce Committee. Last month, he spoke on the House floor in support of getting the National Pediatric Research Network Act (NPRNA) passed and talked about meeting with our family and how much our story of SMA has touched him. His leadership was critical to its passage in the House. NPRNA is a bipartisan pediatric research consortia measure that would benefit multiple rare diseases including SMA. It will help us put in place urgently needed clinical trial infrastructure so we can move several promising therapies to FDA for approval and increase federal funds for SMA research.
Vote for Fred Upton!
Reader Comments (1)
You did an amazing job! Couldn't tell you were nervous at all! I love the commercial!!