About Us

Brooke and Brielle have both been diagnosed with Spinal Muscular Atrophy Type II.  There is no cure for this disease but the National Institute of Health believes a cure can be found within the next 5 years with proper funding. 

Our family has created this page to inform you about the disease, spread awareness and give updates about our life with SMA. 

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All donations will go towards Brooke and Brielle’s medical needs fund.

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All proceeds are donated to Brooke and Brielle’s medical fund!

Thank you Angi!


 

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Thank you Alex!

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Thursday
Sep222011

SMA Awareness in the State of Michigan - House Resolution No. 118

 

  

Our family was invited to the Michigan Capitol Building by our Representative Aric Nesbitt last week to hear him introduce House Resolution No. 118 on the house floor!  It was such an amazing experience!  Rep. Nesbitt gave us a personal tour of the historical building and his desk on the house floor.  We were also able to view the Senate Floor, Supreme Court room and the House Appropriations room. 

 Capitol Building Rotunda tour  Senate Floor Supreme Court Room

After our tour was over, Rep. Nesbitt took us up to the viewing gallery in the House of Representatives room.  He told us to wait there as he left to check in for attendence and the session began.  He introduced House Resolution No. 118 - A Resolution To Declare August 2011 As Spinal Muscular Atrophy Awareness Month In The State Of Michigan.  After he read the resolution, he introduced our family and my mom, Liz.  Then the Representatives on the floor stood up, turned around and clapped and waved to us!  Brooke and Brielle loved this part and excitedly gave their best Princess wave and said, “hi” right back.  What an awesome moment!  If you listen carefully you can hear it in the video below:

It was such an honor to be introduced on the house floor for H.R. No. 118 and we are so happy about spreading the awareness about Spinal Muscular Atrophy.  We would like to say a huge thank you to Representative Aric Nesbitt and his Aide Ryan for inviting us to come out for the day and give us this amazing opportunity!

  

Reader Comments (1)

Wow, what a great moment!! You guys are doing amazing work at spreading awareness for SMA!

September 23, 2011 | Unregistered CommenterKendra

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