About Us

Brooke and Brielle have both been diagnosed with Spinal Muscular Atrophy Type II.  There is no cure for this disease but the National Institute of Health believes a cure can be found within the next 5 years with proper funding. 

Our family has created this page to inform you about the disease, spread awareness and give updates about our life with SMA. 

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All donations will go towards Brooke and Brielle’s medical needs fund.

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All proceeds are donated to Brooke and Brielle’s medical fund!

Thank you Angi!


 

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Thank you Alex!

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Entries in X-rays of the spine (1)

Saturday
Jan122013

Spine X-Rays - Improvement!!

Next up on the docket for the new year and new evaluations was an appointment with our pediatric orthopedic specialist. He took X-rays of the spine to look for curvature. I have been told that when a child has SMA, it’s not a matter of IF the child will get scoliosis, it’s a matter of WHEN. So we want to keep a close eye on the spine.

SMA is a progressive disease so we don’t expect to hear good news at doctor appointments. BUT, the doctor told us that Brielle has actually IMPROVED since her X-ray taken in 2011!! What a blessing!! Brooke has stayed the same (no curvature) so far. She was a little wiggle worm on the X-ray chair so I’m not sure they got the best picture. :)