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Brooke and Brielle have both been diagnosed with Spinal Muscular Atrophy Type II.  There is no cure for this disease but the National Institute of Health believes a cure can be found within the next 5 years with proper funding. 

Our family has created this page to inform you about the disease, spread awareness and give updates about our life with SMA. 

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Sunday
Sep082013

A letter from the White House!

Earlier this year on a day when Brielle stayed home sick from school, we watched her school morning announcements online.  Her elementary Principal talked about how received a letter from President Obama because he was given the award of “Outstanding Practicing Principal” by the Michigan Elementary and Middle School Principals Association.  In the packet he opened from the White House one of the things he showed was a picture of Bo Obama, the presidential dog!  Brielle decided she would like to draw a picture of Bo and write a letter to President Obama and tell him how much she aspires to be a Veterinarian when she grows up.  She hoped to get a letter back some day.  Just a couple months later - Brielle got a packet in the mail from the White House too!!  The packet contained a letter from the President on official White House letterhead, a signed picture of President Obama, an interview fact sheet with the President (did you know when he was young, one of his favorite books was Where the Wild Things Are by Maurice Sendak?), a small picture of the dog Bo Obama and a really fun “Day in the life of Bo” pamphlet that details out Bo’s entire day.  Bo is up at 6:30am and he heads off to bed around 7:00pm.  His days sound very full of things to do!  Brielle was overjoyed to receive this special packet in the mail.  What a great way to learn about some American history.

The picture of Bo Obama that Brielle drew and colored.

 

A letter from the White House!


The contents of the packet.

 

Reader Comments (1)

Very cool!

September 16, 2013 | Unregistered CommenterKendra

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