About Us

Brooke and Brielle have both been diagnosed with Spinal Muscular Atrophy Type II.  There is no cure for this disease but the National Institute of Health believes a cure can be found within the next 5 years with proper funding. 

Our family has created this page to inform you about the disease, spread awareness and give updates about our life with SMA. 

Make A Donation

All donations will go towards Brooke and Brielle’s medical needs fund.

Shop! Inspirational Prints & Awareness Bracelets

All proceeds are donated to Brooke and Brielle’s medical fund!

Thank you Angi!


 

Get your Brooke and Brielle Awareness bracelets HERE!

Thank you Alex!

The Latest Updates!
Search This Site:
YouTube Videos
« Team Brooke and Brielle T-Shirts Now Available! | Main | President Obama Signs NPRNA Into Law!! »
Wednesday
Dec112013

Brooke and Brielle are "Decorated Little Generals" in the effort to boost research for rare diseases and they serve as an inspiration for every one of us! -Fred Upton

Chairman Upton is working on another bill - H.R. 2019 - The Gabriella Miller Kids Research Act of 2013.  This bill would prioritize funding for the research of pediatric rare diseases and disorders such as cancer, autism, fragile X and Spinal Muscular Atrophy.  It would eliminate political money and use the funds instead to expand the pediatric research through the National Institutes of Health’s common fund.
While talking on the House floor, Rep Upton mentioned how this bill would help his constituents —>Brooke and Brielle Kennedy and referred to them as “decorated little Generals” in the effort to boost research for rare diseases and they serve as an inspiration for every one of us!  

Reader Comments (1)

I wish I lived in your district so I could vote for him. Love!!

December 13, 2013 | Unregistered CommenterKendra

PostPost a New Comment

Enter your information below to add a new comment.

My response is on my own website »
Author Email (optional):
Author URL (optional):
Post:
 
Some HTML allowed: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <code> <em> <i> <strike> <strong>