The Madagascar Hack! Rugger's Up and Under Golf Outing

The “Madagascar Hack” is back!

Proceeds benefit the SMA Gene Therapy program from Nationwide Children’s Hospital/Ohio State University in honor of Brooke and Brielle.

The golf outing will be held Saturday, June 9th at The Prairies Golf Club in Kalamazoo, MI.

We will have prizes, raffles and more!
Sign up ASAP, there are limited spaces available.

Costs to play: $160 per foursome, includes dinner following at The Up and Under.

Any questions please contact The UP and Under @ (269) 373-1412

SMA Art Auction (Created by Brielle and Brooke) for SMA Awareness Month Raises $1,750 For Families Of SMA!

This is an ONLINE auction on our Facebook Page.  If you don’t have an account please create one and “like” the Friends of Brielle and Brooke Fan Page and place a comment under the painting that you like with your bid. 

Easy as that!!  :)  Proceeds go to the Families of SMA And your donation is tax deductible.

Time	NOW - August 22 at 9:00pm
Location	ONLINE
Created By	Friends of Brielle and Brooke
More Info	August is SMA Awareness Month and we are celebrating by having an art auction! All paintings were created and named by Brielle and Brooke! https://www.facebook.com/friendsofbrielleandbrooke#!/media/set/?set=a.10150288158398744.353910.345911263743&type=1 Place a comment with your bid under the picture you like and the winning bid by 9:00pm on Monday, August 22nd WINS! All proceeds will go to the Families of SMA for research to find a CURE for SMA! Please invite your friends to this event and help us have a successful Art Auction for SMA! Thank you!!

       There are 8 paintings total. 

Please visit the SMA Art Auction Album on Facebook to place your bid.

 

 

The Rusty Rudder Charity Golf Outing Raises $4,000 for Families of SMA!!

Time	Monday, September 12 · 11:00am - 2:00pm
Location	Skybrook Golf Club 14720 Northgreen Drive Huntersville, NC
Created By	The Rusty Rudder
More Info	The Second Annual Rusty Rudder Golf Outing. Proceeds benefit The Families of SMA (FSMA) in honor of Brooke and Brielle. Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by: - Funding and advancing a comprehensive research program; - Supporting SMA families through networking, information and services; - Improving care for all SMA patients; - Educating health professionals and the public about SMA; - Enlisting government support for SMA; - Embracing all touched by SMA in a caring community. “Our vision is a world where Spinal Muscular Atrophy is treatable and curable.” The golf outing will be held Monday, September 12th at Skybrook Golf Club in Huntersville, NC. We will have prizes for lowest score, longest drive, closest to the hole, raffles and more! We are looking for donations, hole sponsors, golfers, and advertising to help raise as much money as possible. Our goal this year is to have a full field of 144 golfers. If any one has any ideas or suggestions, please let us know. Costs to play: in July, $400 per foursome in August, $500 per foursome *add $200 to sponsor a hole! Any questions please contact Eric or Ted @ 704-895-9195

The Madagascar Hack! Rugger's Up and Under Golf Outing Raises $299.00 for Families of SMA

Time	Saturday, June 25 · 11:00am - 2:00pm
Location	The Prairies Golf Club 5303 West Main Kalamazoo, MI 49009
Created By	Friends of Brielle and Brooke
More Info	Rugger’s Up and Under Golf Outing “The Madagascar Hack” is back! Registration is at 11 am with a shotgun start at 12 Noon. Four person teams and the entry is $60.00 per person. Steak dinner to follow at Up and Under on the Tiki patio. Raffle tickets will be sold at the course and the drawing will immediately follow dinner. Proceeds from the outing will go to benefit Families of Spinal Muscular Atrophy (FSMA) in honor of Brielle and Brooke! Register early and good luck!

7th Annual Michigan FSMA 5K Run, Walk, & Roll & Family Fun Day

Come join team Brielle and Brooke May 7 for the

 Michigan Chapter FSMA walk-n-roll 5K!

Your tax-deductible gift will bring us one step closer to creating a world where Spinal Muscular Atrophy is treatable and curable!

Time	Saturday, May 7 ·  9:30am - 12:30pm
Location	Hawk Island Park - Lansing, MI
Created By	Michelle Elsbrie Fox
More Info	8:30am Early Registration 9:30am 5K Walk/Run 10:15am Kids’ Fun Run The Run, Walk, & Roll is a fun family event with music, raffles, & clowns offering face painting & balloon animals for the kids! Medals will be given to the 1st, 2nd, & 3rd participant in each division. (No pets please)

Update on Sunday, May 8, 2011 at 10:14PM by Sarah

Team Brielle and Brooke raised $1,738.00 for the Families of Spinal Muscular Atrophy (FSMA) Walk-N-Roll today! Thanks to all of our amazing friends and family for your support, it means the world to us.

Check out this post for more details on the special day:  http://www.brookeandbrielle.com/home/2011/5/8/michigan-chapters-5k-run-walk-n-roll-family-fun-day.html

Update on Wednesday, July 13, 2011 at 4:17PM by Sarah

7th Annual Families of SMA – Michigan Chapter Run, Walk-n-Roll Draws a Huge Crowd

Published on June 3, 2011 by Families of SMA in Chapter Stories

Over 300 People Gathered at Hawk Island Park in Lansing and Raised Over $36,000